Giving Hope to Kids!
Ayers Fragile X Fall Fest
Our son Levi was diagnosed with Fragile X Syndrome (FXS) June of 2017 (www.fragilex.org). Today he is 3 years old and will be a wild 4 year old in October.
We went through Genetic testing in order to receive the diagnosis. After receiving the diagnosis, we both said, Oh No! Then said wait, what does this mean...?? Who has experience with this, what is it, what does it look like, what can we do for our son??
The intent of this event is to simply raise awareness of Fragile X. It is amazing to us that FXS is the leading known genetic cause of autism and approximately 2-6% of children with autism are diagnosed with Fragile X syndrome. However, it is rare that you come across anyone with any experience involving FXS, from friends and family to Healthcare professionals, school officials and many others within the community.
We have always looked for an excuse to have a good time and this is one of those times. We want to simply raise awareness within our community so they can continue to help spread the word. We are looking forward to sharing information, having information on FXS available, as well as recognizing the amazing services and support we now have.
Country Boy has offered their amazing venue. Live music will be playing. Come out, meet someone new, learn a small piece of information and help make YOUR CIRCLE aware of FXS.
Our family looks forward to seeing you there!!
Giving Hope, Cincinnati Children's community philanthropy program, is a great way to get involved and really make a difference for sick and injured kids. As a nonprofit hospital and medical center, Cincinnati Children's depends largely on support from the community.
By making a gift to my Giving Hope online fundraiser, you are helping to bring hope and healing to kids and families in our community, across the country and around the world.
Thank you! Together, we will change the outcome!
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